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Session 2: The Patient Journey in Latin America: Where Are We Missing the Patient Voice?
Session Chair(s)
Viviane Minhoto Arid De Lima, PharmD, MBA
Senior Manager, LATAM Medical Information Lead, Gilead Sciences, Brazil
Despite growing efforts to become more patient-centered, many Medical Affairs decisions continue to be primarily informed by clinical, operational, and internal perspectives. Important aspects of the patient experience often remain invisible, even when organizations have access to large amounts of information. This session will explore three complementary sources of patient insight. Through structured patient listening initiatives, real-world interactions captured through Medical Information and customer support channels, and the lived experience of a patient advocate, speakers will highlight where the patient voice is often overlooked and what organizations may be missing. Using practical examples from patient journey studies, Medical Information operations, and patient communities, the session will demonstrate how patient experiences can reveal unmet needs, barriers to care, communication gaps, and opportunities for more effective Medical Affairs strategies. Attendees will leave with practical approaches to recognize, connect, and act upon patient insights already available within their organizations.
Learning Objective : At the conclusion of this session, participants should be able to: - Identify sources of patient insights across structured research, Medical Information interactions, and patient communities.
- Analyze gaps between patient and healthcare professional perspectives and assess their implications for Medical Affairs strategies.
- Apply practical approaches to connect patient insights across organizational functions and support more patient-centered decision-making.
Speaker(s)
From Patient and Physician Voices to Actionable Medical Affairs: A Real-World Lupus Insight Framework
Elaine W Menezes, MBA
Medical Information Manager, Pfizer, Brazil
From Patient and Physician Voices to Actionable Medical Affairs: A Real-World Lupus Insight Framework
Kelly Rodrigues
Executive Director, Patient Centricity Consulting, Brazil
Speaker
Carlos Eduardo Danilevicius Tenório
General Coordinator and Co-founder, Brazilian Association for Lupus, Rheumatic and Rare Diseases, Brazil