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[V6-S3] Patient Empowerment: Status Update of Patient Participation Support Program
Session Chair(s)
Eri Sekine
Executive Vice President Data Business, CMIC Co., Ltd, Japan
In recent years, awareness and interest in Patient Centricity have increased, and even in Japan, patients are included as a member in meetings or committees in government and medical institutions. In order to promote patients/citizens participation, efforts to provide necessary knowledge and skills for participation are very important. Various attempts at education of patients/citizens by industry, health authority and academia have been conducted both in Japan and oversees. Knowing such cases and objectives and thinking about what we should do is needed. In this session, we will introduce the efforts of European Patient Forum, the efforts of the Japan Intestinal Disease and Sickness Group Association that created guidance for patients’ participation in clinical trials, and the efforts to promote patient participation by AMED, and discuss the achievement, tasks and others.
Speaker(s)
Paul Robinson, MD
EU Patient Engagement Lead, MSD, United Kingdom
Patient Engagement A European Perspective
Yukiko Mori
President, Japan Patients Association, Japan
Regarding Rare and Intractable Diseases (NANBYO) Preparation of Guidelines for Research Cooperation and Collaboration Challenges of Research Participation from the Patient’s Perspective
Keiko Katsui, PHD
Division of Biomedical Ethics and Social Co-Creation, Japan Agency for Medical Research and Development (AMED), Japan
Patient and Public Involvement in AMED: for the Future of Medical Research and Development