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Preparing for Purposeful Patient Organization Partnerships

Increase your understanding of patient advocacy communities, changing capacities and expectations, and emerging best practices in fostering partnerships between life science organizations and patient organizations.


The 5 W's: Why? Who? When? What? hoW?

There has never been more interest in fostering fruitful partnerships between life science companies and patient organizations. As with any new endeavor, before you get started it’s prudent to gain an understanding of the terrain of patient advocacy communities, changing capacities and expectations, and emerging best practices. This course provides an overview of different organizational types, how to identify and gauge potential partners, when to engage, what might be gained from partnerships, and guiding principles to maximize shared success.

This module takes an average of 3 hours to complete.

This module is part of the DIA Patient Engagement eLearning Program and a component of the Patient Engagement Certificate Program.

Featured topics

    • A Time of Unique Opportunity
    • Why Partner With Patient Organizations?
    • Who Should You Partner With?
    • When to Partner? The Importance of Timing
    • What Is The Nature Of The Intended Partnership?  Clarify the Ask And The Opportunity
    • How? Best Practices for Engagement 
    • Common Challenges
    • Examples of Quality, Mutually Beneficial Engagements

Who should attend?

  • This product is designed for professionals involved in:

    • Patient Advocacy/Engagement/Experience/Access (including Chief Patient Officers)
    • Patient Communications
    • Medical Affairs and Medical Communications (including Chief Medical Officers)
    • Health Outcomes
    • Study Endpoint Development
    • Research & Development
    • Clinical Trial Design
    • Clinical Operations
    • Benefit-Risk Assessment
    • Regulatory
    • Clinical Safety, Pharmacovigilance, and Risk Management
    • Patient Support Services
    • Commercial Launch Readiness/Marketing
    • Market Access Strategy
    • Legal, Compliance, and Contracting

      Learning objectives

      • Upon completion of this module, learners should be able to:

        • Recognize the rationale for partnering with patients
        • Define different types of patient organizations and existing resources to help identify those whose objectives and capabilities are best positioned to align with stated project goals
        • List factors to consider in timing the approach to patient organizations
        • Utilize existing open source resources to reduce uncertainty about terms of and conditions for partnering activities
        • Outline criteria for meaningful, quality engagements with patient organizations to guide interactions and contracting
        • Analyze common challenges with partnering with patient organizations and ways to mitigate them

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