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Patient Involvement in Patient Preference Studies: Lessons from the IMI PREFER Project
Session Chair(s)
Kristin Bullok, PHD
Benefit-Risk Management Scientist, Global Patient Safety
Eli Lilly and Company, United States
Speakers will discuss ways that patients were involved, barriers overcome, value gained, and lessons learned when including patients at different stages – from the design to the communication of results - of patient preference studies.
Learning Objective : 1. Discuss examples of patient involvement in the PREFER case studies and identify activities that facilitate active and effective involvement of patients as partners or collaborators; 2. Evaluate opportunities and strategies to facilitate patient involvement in the design, conduct, organization and communication of patient preference studies.
Speaker(s)
Patient Involvement in Preference Studies: PREFER’s Commitment, Recapping Case Studies Learnings and Next Steps
Eline van Overbeeke, PHD, MS
Pfizer, Belgium
Health Economics and Outcomes Research Manager
Patient Partner Contribution to Survey Content: The PREFER RA Case Study
Marie Falahee, PHD
Institute of Inflammation and Ageing, University of Birmingham Laboratories, United Kingdom
Lecturer, University of Birmingham & Rheumatology Research Group
Patient Involvement in Attributes, Levels and Descriptions Development: The PREFER Myeloma Study
Rosanne Janssens, DRSC, MSC
KU Leuven, Belgium
Postdoctoral Researcher, Patient Experience Data & Patient Preference Studies
Connecting and Engagement with Patient Partners and Patient Advisory Group: The PREFER NMD Case Study
Cecilia Jimenez-Moreno, PHD
Evidera, United Kingdom
Research Associate III