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Keynote Address: A Family’s Outlook on the SMA Diagnoses of Their Daughter and Son
Session Chair(s)
Christina Bucci-Rechtweg, MD
Global Head, Maternal Health and Pediatric Regulatory Policy
Novartis , United States
Cheryl Yoder will talk about the difference in outlook their family had between the SMA diagnoses of their daughter and son.
The Yoder’s daughter was diagnosed in 2012, at a time when no treatments were on the horizon. Just three years later, in 2015, her son was able to take part in a Phase 2 clinical trial of nusinersen.
Speaker(s)
Speaker
Cheryl Yoder, RN
Cure SMA, United States
Patient Advocate