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Session 11: Valuing Patient Input into Clinical Trials
Session Chair(s)
Deborah Collyar
President
Patient Advocates In Research (PAIR), United States
Historical approaches to clinical trials created challenging issues, including exceedingly low patient participation and too many uncompleted trials. There are many reasons for this, including focus on advancing the market instead of science, ultimately relegating real patient priorities to talking points rather than representing the true goal. Patients and their organizations are changing this by taking a more direct role in clinical trial development and implementation.
Learning Objective : At the conclusion of this session, participants should be able to:- Discuss the various ways that patients influence clinical trials
- Assess why patient-provided data is critical and how it effects clinical trials
- Describe how public study result summaries can be used with patients and providers
Speaker(s)
How Patients are Influencing Clinical Trials
Deborah Collyar
Patient Advocates In Research (PAIR), United States
President
Why Patient-Provided Data is Critical and How it Effects Clinical Trials
Patty Spears
University of North Carolina At Chapel Hill, United States
Research Patient Advocate
Opportunities to Use Health Literate Information for People and Providers
Catina O'Leary, PhD
Health Literacy Media, United States
President and Chief Executive Officer
Panelist
Elizabeth Roberts, MSc
UCB Inc., United States
Data Policy and Privacy Lead