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Patient Observation Versus Patient Engagement: Optimizing Development
Session Chair(s)
Nadina Jose, MD
Assistant Professor, School of Health Professions, MS Clinical Research Program
Rutgers, The State University of New Jersey, United States
This forum will identify a sponsor that uses a Patient Leadership Council to regularly and continuously receive patient input, a patient group that has a collaborative relationship with a sponsor to continuously share patient insights, a sponsor that has seen landscape change and can share the impact and a healthcare provider (HCP) to discuss their historical collaboration with sponsors to collect and share patient insights.
Learning Objective : Identify how healthcare providers have historically collaborated to share patient insights and how can they help advance patient engagement; Discuss how medical science liaisons engage with the healthcare providers to develop meaningful scientific exchanges while generating insights about patients; Discuss processes that help develop a comprehensive patient engagement program, and present experiences with patient communities.
Speaker(s)
Panelist
Alexandra Malinowski, PHARMD
Ultragenyx Pharmaceutical Inc., United States
Senior Medical Science Liasion, Northeast
Example of Best Practice in Protocol Design Review
Ellen Coleman, MPH, MS
VOZ Advisors, United States
President and Chief Executive Officer
Panelist
Mark Summers
WIRB-Copernicus Group (WCG), United States
President, Patient Engagement Division
Panelist
Kristin Smedley
Curing Retinal Blindness Foundation, United States
President