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McCormick Place

2017 年 06 月 18 日 8:30 上午 - 2017 年 06 月 22 日 12:45 下午

2301 South Martin Luther King Jr. Drive, Gate 4, Chicago, IL 60616

DIA 2017 Annual Meeting

Not Your Grandma's Patient Advocacy Group Anymore

Session Chair(s)

Laura  Kolaczkowski

Laura Kolaczkowski

Lead Patient Representative, Co-Principal Investigator

iConquerMS PPRN, PCORnet, United States

This forum, subtitled The Growth of Relational, Regulatory and Research Equity in Modern Patient Advocacy Groups, will share end-to-end stories of how advocates are gaining influence with researchers, policy makers, and regulators to drive the approvals of new therapies. The panelists will tell their stories from the point of view of the advocates who have organized resources differently to increase the volume and speed of research in their disease, and to address gaps in the environment in order to speed review and approvals.   Panelists will offer practical advice on how to build a coalition of patients, researchers, and family care physicians to navigate promising new therapies through the regulatory process and ultimately to patients. 

Learning Objective : Discuss how to work with patient advocacy groups to develop, assess, and approve new medicines.

Speaker(s)

Upal  Basu Roy, PHD, MPH

Panelist

Upal Basu Roy, PHD, MPH

LUNGevity Foundation, United States

Vice President of Research

Melissa  Hogan, JD

Panelist

Melissa Hogan, JD

Project Alive, United States

Founder/President

K. Kimberly  McCleary

Panelist

K. Kimberly McCleary

The Kith Collective, LLC, United States

Founder and Chief Executive Officer

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