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Session Chair(s)
Carl Chiang
Director, Clinical Development
Zinfandel Pharmaceuticals, United States
Speaker(s)
Moderator
James Valentine, JD, MHS
Hyman, Phelps & McNamara, PC, United States
Director
Lode Dewulf
Corvalus, Belgium
Patient and Medical Affairs Consultant
Mary Dwight
Cystic Fibrosis Foundation, United States
Vice President for Government Affairs
Megan L. O'Boyle
Phelan-Mcdermid Syndrome Foundation, United States
PI, PMSIR (patient registry), PMS_DN (PCORI data sharing project)
Suzanne Schrandt, JD
ExPPect, United States
Founder, Chief Executive Office and Chief Patient Advocate
Thomas P. Sellers, MPA
Millennium: The Takeda Oncology Company, United States
Senior Director, Patient Advocacy & Corporate Philanthropy
Discussion 1: Engagement, Advocacy, Patient-centric Practice - Are They the Same? What do These Endeavors Mean to Patients, to Researchers, to Regulators?
Open Floor Discussion
United States
Discussion 2: Who is the Patient? Patients and Patient Groups; Patients and Caregivers; Patients with Rare Diseases, with Chronic Disease, and with Serious Acute Disease
Open Floor Discussion
United States
Discussion 3: Patient Populations - Navigating Stages of Maturation
Open Floor Discussion
United States