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Preparing for Purposeful Patient Organization Partnerships

Increase your understanding of patient advocacy communities, changing capacities and expectations, and emerging best practices in fostering partnerships between life science organizations and patient organizations.

Overview

In recent years, there has been increased interest in fostering effective and mutually beneficial partnerships between life sciences companies and patient organizations. This module examines the evolution of patient organizations, considering past and current expectations and future opportunities for partnership. The primary focus is on the five key considerations of patient organization partnerships: WHY partner with patient organizations? WHO should you partner with? WHEN should you partner? WHAT is the nature of the intended partnership? HOW can the partnership be accomplished? Common challenges and real-life cases of successful partnerships will also be discussed.

Featured topics

  • The evolution of patient organizations
  • Why partner with patient organizations?
  • Who should you partner with?
  • When to partner? The importance of timing
  • What is the nature of the intended partnership? Clarify the ask and the opportunity
  • How? Best practices for engagement
  • Common challenges and cases of successful partnerships

Who should attend?

This course is designed for professionals involved in:

  • Patient Advocacy/Engagement/Experience/Access (Including Chief Patient Officers)
  • Patient Communications
  • Medical Affairs and Medical Communities (Including Chief Medical Officer)
  • Health Outcomes
  • Study Endpoint Development
  • Research & Development
  • Clinical Trial Design, Clinical Operations
  • Benefit-Risk Assessment
  • Regulatory
  • Clinical Safety, Pharmacovigilance and Risk Management
  • Patient Support Services
  • Commercial Launch Readiness/Marketing
  • Market Access Strategy
  • Legal, compliance, and contracting

Learning objectives

At the conclusion of this course, participants should be able to

  • Recognize the rationale for partnering with patients.
  • Identify the five questions to ask and actions to take when considering partnering with patient organizations.
  • List the different types of patient organizations and factors to consider in timing your outreach to potential partners.
  • Utilize resources to find patient organizations that align with your project goals.
  • Apply best practices for patient organization engagement, including the guiding principles from industry groups, guidance from multi-stakeholder collaboratives, and specific guidance on contracting.
  • Identify common challenges with partnering with patient organizations and ways to mitigate them.

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