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DIA 2021 Global Annual Meeting

Patient-Led Special Initiatives

Session Chair(s)

Jennifer Farmer, MS

Jennifer Farmer, MS

  • Chief Executive Officer
  • Friedreich's Ataxia Research Alliance (FARA), United States
In this session, we will share the experiences of practitioners in a wide range of healthcare, research, and patient settings.
Learning Objective : Identify how patient involvement and engagement can inform protocol design, improve clinical trial experiences, and help shape policy and practice; Describe case studies of fit-for-purpose patient engagement; Explain the need for and components of a framework/toolkit that can be used to help organizations facilitate patient engagement.

Speaker(s)

Richard Stephens, MA

Coping and Hoping: Patient-Led Initiatives To Improve Cancer Patient Experiences in the UK

Richard Stephens, MA

  • Former Chair, Consumer Forum (Patient Advocates)
  • National Cancer Research Institute (NCRI), United Kingdom
Annick De Bruin, MBA

New Insights on Pediatric Clinical Trials: Parent and Child Perspectives

Annick De Bruin, MBA

  • Senior Director, Research Services
  • CISCRP, United States
Valerie Powell, MS

Developing an Enterprise-Wide Patient Engagement Framework

Valerie Powell, MS

  • Vice President, Research Services
  • Healthivibe, A Division of Corevitas, LLC, United States