Menu Back toPatient-Led Special Initiatives

DIA 2021 Global Annual Meeting

Patient-Led Special Initiatives

Session Chair(s)

Jennifer  Farmer, MS

Jennifer Farmer, MS

  • Chief Executive Officer
  • Friedreich's Ataxia Research Alliance (FARA), United States
In this session, we will share the experiences of practitioners in a wide range of healthcare, research, and patient settings.
Learning Objective : Identify how patient involvement and engagement can inform protocol design, improve clinical trial experiences, and help shape policy and practice; Describe case studies of fit-for-purpose patient engagement; Explain the need for and components of a framework/toolkit that can be used to help organizations facilitate patient engagement.


Richard  Stephens, MA

Coping and Hoping: Patient-Led Initiatives To Improve Cancer Patient Experiences in the UK

Richard Stephens, MA

  • Past Chair, Consumer Forum
  • National Cancer Research Institute (NCRI), United Kingdom
Annick  De Bruin, MBA

New Insights on Pediatric Clinical Trials: Parent and Child Perspectives

Annick De Bruin, MBA

  • Senior Director, Research Services
  • CISCRP, United States
Valerie  Powell, MS

Developing an Enterprise-Wide Patient Engagement Framework

Valerie Powell, MS

  • Chief Patient Officer, CorEvitas and Vice President, Patient Experience
  • Healthivibe, The Patient Experience Team of Corevitas, LLC, United States