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DIA 2021 Global Annual Meeting


Patient Engagement in the Early Stage of Medicines’ Development: A Co-Created How-to Guide and its Piloting Results

Session Chair(s)

Chi  Pakarinen, MA

Chi Pakarinen, MA

  • R&D Patient Engagement Lead, GI
  • Takeda, United States
Patient engagement is ideally done in a systematic way and early on, but there is very little evidence and best practices showing patient engagement and its benefits as early as in the discovery and preclinical phases. This panel session presents a co-created ‘How-to’ guide for patient engagement in the early stages of medicines’ development and initial results from organizations piloting the guide. This session walks through the main points in the new guide that helps industry and researchers to make plans to involve patients in a systematic way early in the discovery phase and presents a four-step approach to guide research teams through. Two piloting cases have started to implement the guide and will share their early learnings to inspire more organizations and research teams to involve patients as true partners. Download the guide and join us as we take you through the key parts and guide you on your journey to involving patients in early research.
Learning Objective : Implement and plan patient engagement in the early stages of medicines’ development WITH patient partners; Define how to identify and reach out to potential patient partners and distinguish the possibilities and concerns regarding PE in this stage; Apply tips and lessons learned in your everyday work to implement patient engagement in the early stages of research.

Speaker(s)

Carole Sian Scrafton, MBA

Panelist

Carole Sian Scrafton, MBA

  • Co-Founder, Chair, Patient Advocate
  • FibroFlutters Patient Advovacy Organisation, United Kingdom
Schiffon  Wong, MPH

Panelist

Schiffon Wong, MPH

  • Executive Director, Global Evidence and Value Development, Global R&D
  • EMD Serono, United States
Merlin  Williams, MS

Panelist

Merlin Williams, MS

  • Senior Consultant
  • Executive Insight, Switzerland
Dawn P. Richards, PhD

Panelist

Dawn P. Richards, PhD

  • Director, Patient and Public Engagement
  • Clinical Trials Ontario, Canada
Oleksandr  Gorbenko, MD, PhD

Panelist

Oleksandr Gorbenko, MD, PhD

  • Global Patient Centricity Director
  • Ipsen, United Kingdom