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Engaging Caregivers in Research and Medical Product Development
Session Chair(s)
K. Kimberly McCleary
Founder and Chief Executive Officer
The Kith Collective, LLC, United States
We will address ways for caregivers and care partners to participate as partners to inform R&D activities, including how their roles may be distinct from those of the patients whom they care for. The panel will draw on experiences – including professional experience and lived experience as caregivers – that span the various roles of caregivers in pediatric and adult settings. Panelists will explore ways in which the caregiver’s role can have a direct and positive influence in research activities, including their ability to influence patient participation and engagement in research activities. You’ll leave the session with a new understanding about the large and largely untapped reservoir of information that family caregivers and care partners can contribute to your program and ways to help them prepare for deeper engagement and more meaningful contributions to the research enterprise.
Learning Objective : Recognize the unique and distinctive roles for caregivers in the setting of patient-centered research and patient-focused drug development; Identify opportunities to leverage caregivers’ unique insights and ways in which early engagement can benefit clinical development programs/projects; Assess hidden challenges that may exist in the patient/caregiver/healthcare provider dynamic that can impact projects and learn strategies to overcome challenges and build more inclusive programs.
Speaker(s)
Perception Versus Reality: What Are the Training Needs of Patients and Their Care Partners in Healthcare Innovation?
Sarah Krug, MS
CANCER101, United States
Executive Director
Tools for Your Pediatric Clinical Research Engagement Toolkit
Lindsay Singler, MPH
Duke Clinical Research Institute, United States
Associate Director, Research Communications and Engagement
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