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Session 11: Valuing Patient Input into Clinical Trials
Session Chair(s)
Deborah Collyar
President, Patient Advocates In Research (PAIR), United States
Historical approaches to clinical trials created challenging issues, including exceedingly low patient participation and too many uncompleted trials. There are many reasons for this, including focus on advancing the market instead of science, ultimately relegating real patient priorities to talking points rather than representing the true goal. Patients and their organizations are changing this by taking a more direct role in clinical trial development and implementation.
Learning Objective : At the conclusion of this session, participants should be able to:- Discuss the various ways that patients influence clinical trials
- Assess why patient-provided data is critical and how it effects clinical trials
- Describe how public study result summaries can be used with patients and providers
Speaker(s)
How Patients are Influencing Clinical Trials
President, Patient Advocates In Research (PAIR), United States
Why Patient-Provided Data is Critical and How it Effects Clinical Trials
Research Patient Advocate, University of North Carolina At Chapel Hill, United States
Opportunities to Use Health Literate Information for People and Providers
President and Chief Executive Officer, Health Literacy Media, United States
Panelist
Data Policy and Privacy Lead, UCB Inc., United States
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