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Patient Preferences in Decision Making and the PREFER Project: Past, Present, and Future
Session Chair(s)
Kristin Bullok, PhD
Benefit-Risk Management Scientist, Global Patient Safety
Eli Lilly and Company, United States
Speakers will present an historical overview of decision making, including PREFER’s place in that evolving landscape; the results from the ongoing PREFER project; and how patients and their representatives provide valuable insight into the project.
Learning Objective : Discuss the evolution of decision making and the expanding role of patient preferences; Describe the aims and results of the PREFER project regarding when and how to integrate patient preferences into medical product decision making from diverse perspectives: industry, regulator, and patient; Identify the value gained by including patient representatives in study development.
Speaker(s)
Benefit-Risk Evaluation with the Patient’s Perspective: Past, Present, and Future
Juhaeri Juhaeri, PhD
Sanofi, United States
Vice President and Head, Epidemiology and Benefit-Risk Evaluation
Patient Preference Studies: Why, When, and How
Rachael L. DiSantostefano, PhD, MS
Janssen Research & Development, LLC, United States
Senior Director, Epidemiology
Patient Involvement in Preference Study Design: A Case Study
Jenny Sharpe, PhD
Muscular Dystrophy UK , United Kingdom
Research Communications Manager
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