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The Rare Disease Experience in Clinical Trials
Session Chair(s)
Steven L. Roberds, PhD
Chief Scientific Officer
Tuberous Sclerosis Alliance, United States
This session will provide a look at the rare disease patient’s experience, and provide professionals with insight on how to craft accessible trials that meet this patient population’s needs. The session will also focus on the importance of increasing the number of rare disease trials throughout the industry.
Learning Objective : Discuss how the rare disease patient’s experience differs from those suffering from more common indications, and ways in which it is the same.
Speaker(s)
No Two Patients Are the Same: The Rare Disease Experience in Clinical Trials
Christian Burns
Elligo International , United States
Advisor
Panelist
Isabelle Lousada, MA
Amyloidosis Research Consortium, United States
Chief Executive Officer and President
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