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Hilton London Docklands Riverside Hotel

Sep 19, 2018 8:00 AM - Sep 20, 2018 5:00 PM

265 Rotherhithe Street , London, SE16 5HW, United Kingdom

Global Clinical Trials Transparency Conference

Session 6: Clinical Trial Results Summaries for Laypersons

Session Chair(s)

Rebecca  Williams, PharmD, MPH

Rebecca Williams, PharmD, MPH

Senior Clinical Trials Subject Matter Expert

Essex, an Emmes Company, United States

There has been recent progress towards making the results of clinical trials available in a format and language that can be readily understood by the general public. This session will cover the patient experience and expectations for summaries, the EU expert group recommendations on summaries of clinical trial results for laypersons, and experience with returning results to research participants.


Lisa  Chamberlain-James, PhD

Writing Lay Summaries - a Survivor’s Guide: Lisa Chamberlain-James, PhD

Senior Partner

Trilogy Writing & Consulting, United Kingdom

Deborah  Collyar

Patient Expectations for Results Summaries: Deborah Collyar


Patient Advocates In Research (PAIR), United States

Rikke  Gøbel

Returning Research Results To Participants : Rikke Gøbel

Senior Medical Writer

Novo Nordisk, Denmark

Ann  Olling, MS

Returning Research Results To Participants : Ann Olling, MS

Principal Medical Writer

Novo Nordisk A/S, Denmark

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