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Patient Registries: Designing, Implementing, and Leveraging to Accelerate Clinical Trials
Session Chair(s)
Lisa Palladino-Kim, EDD, MS
Lecturer / Director of Capstone, Rutgers School of Health Professions Clin Research Mgmt, United States
This session will examine how the biopharmaceutical industry, academic organizations, and patient advocacy groups value and utilize patient registries in clinical trials. We will discuss areas of controversy and best practices.
Learning Objective : Identify the methodology used to design and implement a patient registry; Illustrate how registries accelerate clinical trials and incorporate the patient voice into research.
Speaker(s)
Leanne Larson
Senior Vice President, WW Head Real-World Evidence and Access, Parexel International, United States
Beyond the RFP: Driving Value Through Effective Registry Strategy, Design, and Operations
MJ Schmidt
Vice President, Business Development, Engage Health, Inc., United States
Incorporating Patient Voice to Speed Development Using Rare Disease Registries
Thomas A. Krohn, RPH
Chief Development Officer, Antidote, United States
Bridging Patient Registries to Clinical Research: A Win-Win Opportunity
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