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International Cooperation in Rare Disease Research
Session Chair(s)
Paul Lasko, PHD
Department of Biology, McGill University, Canada
This forum will address the role of the International Rare Diseases Research Consortium (IRDiRC) in fostering international collaboration in rare disease research and discuss recent progress toward identifying rare disease genes and developing new therapeutics. We will also examine a proposed cooperation network in Asia Pacific in orphan drug clinical trials.
Learning Objective : Define the role of the International Rare Diseases Research Consortium (IRDiRC) in fostering international collaboration in rare disease research; Describe recent progress toward identifying rare disease genes and developing new therapeutics; Identify opportunities for interested organizations to join IRDiRC.
Speaker(s)
Paul Lasko, PHD
Department of Biology, McGill University, Canada
Panelist
Chih-Hwa Wallace Lin, PHD
Researcher and Acting Director, Biotechnology Unit, Board of Science and Technology, Executive Yuan, ROC, Taiwan
Facilitate the Accessibility via Asia-Pacific Collaboration Network of Clinical Trials for Orphan Drugs
Jordi Llinares Garcia, MS
Head of Research and Innovation, European Medicines Agency, Netherlands
EMA Perspective
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