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San Diego Convention Center

Jun 15, 2014 8:30 AM - Jun 19, 2014 12:45 PM

111 W Harbor Drive, , San Diego, CA 92101 , USA

DIA 2014 50th Annual Meeting "Celebrate the Past - Invent the Future"

Innovative Patient Recruitment Solutions for Rare Disease Clinical Trials

Session Chair(s)

Neil  Weisman

Neil Weisman

President, Continuum Clinical, United States

Bolstering Development Programs in Rare Diseases: Simulating Clinical Trials with a Virtual Patient Population

Learning Objective : Describe innovative solutions to enhance patient recruitment efforts for rare disease trials, including clinical trial simulations, in-home clinical trial visits, and engagement of patient advocacy and grassroots organizations; Demonstrate best practices for maximizing each of these efforts; Present case studies where patient recruitment was enhanced as a result of these efforts.

Speaker(s)

Neil  Weisman

Neil Weisman

President, Continuum Clinical, United States

Recruitment for Rare Diseases: Are You Maximizing Your Relationship with Your Patient Advocacy Group?

Badri  Rengarajan, MD

Badri Rengarajan, MD

Life Sciences, Jazz Pharmaceuticals, United States

Bolstering Development Programs in Rare Diseases: Simulating Clinical Trials with a Virtual Patient Population

Nicki M. Norris, MBA

Nicki M. Norris, MBA

CEO, Accellacare In-Home Services, United States

Helping the Rare Disease Patient Say Yes to Participation in Clinical Research

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