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Session 4, Track B: Supporting the Interface Between Community-led Engagement and Researchers: Partners in Clinical Trial Development
Session Chair(s)
Erin M Cherban, MSc
Chief Clinical Research Officer, Centre for Advancing Health Outcomes, Canada
Katalin Bertenyi, MSc
Manager, Centre for Blood, Blood Products and Biotherapeutics, Health Canada, Canada
Clinical trials development has advanced to full inclusion of patient-partners in proposing and participating in the early development phase of clinical research studies and trials. This session will focus on the educational tools and resources that community members have developed for training new community members and researchers to assist in early development of trials. This session will also feature a presentation from Health Canada that provides an overview of Health Canada’s clinical trials transparency initiative that includes a searchable Canadian clinical trials portal.
Creating Training With Community, For Community Muluba Habanyama, Ontario AIDS Network
Clinical Trials Modernization - Transparency Initiative: Canadian Clinical Trial Search Portal and Guidance Document
Sarah Topham, Health Canada
Patient Perspective on Clinical Trial Development Josephine Sirna, Thalassemia Foundation of Canada
Mariya Chigrinova, Health Canada
Learning Objective : - Gain understanding principles for collaborating with community on clinical trial development
- Understand balance between engaging community members in a tokenistic fashion versus meaningful collaboration
- Learn about training resources to assist your company with meaningful community engagement
- Learn about Health Canada’s new tool for community members to search for Canadian clinical trials
Speaker(s)
Creating Training With Community, For Community
Muluba Habanyama
Knowledge Mobilization Lead, Cihr's Pan-Canadian HIV and STBBI Clinical Trials Network.?, Canada
Patient Perspective on Clinical Trial Development
Josephine Sirna, MSc
President, Thalassemia Foundation of Canada, Canada
Clinical Trials Modernization - Transparency Initiative: Canadian Clinical Trial Search Portal and Guidance Document
Sarah Topham, MSN
Policy Analyst, Health Products and Food Branch, Health Canada, Canada
Speaker
Mariya Chigrinova, MSc
Policy Analyst, PDD BPSIP, Health Canada, Canada
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