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Patient Engagement Quality Guidance: Results and Learnings from Global Multistakeholder Pilots
Session Chair(s)
Nicholas Brooke, MBA
Executive Director, Patient Focused Medicines Development (PFMD)
PFMD, Belgium
This panel session will present actual projects that are testing the Patient Engagement Quality Guidance in practice in various scope and context to determine how the guidance could have increased the impact or improve the results/outcomes in the projects.
The expert panel will share their interim feedback and learnings as well as challenges and how they’ve overcome them, focusing on the practical implementation of the PE Quality Guidance in these different situations. They will explore common themes and identify variations to provide a holistic overview of the usage of the PE Quality Guidance in different settings. The panel will also provide insights from different stakeholder perspectives on the use and value of the PE Quality Guidance and how it can facilitate an improved and systematic PE across the medicines’ development lifecycle. Speakers will include: representatives piloting/with practical experience of the Quality Guidance from patient/patient groups; academia and industry. Finally, the audience will get access to these resources to start their own PE journey.
Learning Objective : Describe the Patient Engagement Quality Guidance and the seven quality criteria that it presents; Discuss actual projects from various organizations; Identify how to operationalize the guidance and move from paper to action; Describe a patient engagement platform that connects and interlinks people, organizations, initiatives, resources, and tools; Recognize the co-created resources.
Speaker(s)
Panelist
Jennifer Martin
National Kidney Foundation, United States
Vice President, Program Development
Panelist
Kay Jane Warner
GlaxoSmithKline , United Kingdom
Patient Engagement Lead, Patients in Partnership
Panelist
Thomas Gegeny, MS
Envision Pharma Group, United States
Senior Scientific Director
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