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A Patient Engagement Wrap Up: Lessons Learned from DIA 2019 and Where Do We Go from Here
Session Chair(s)
Kristin Voorhees, MA
Director, Patient Advocacy
Ultragenyx, United States
The final day of DIA 2019 presents a unique opportunity for the multidisciplinary stakeholders interested in the continued growth and evolving trajectory of patient engagement and patient-focused drug development to convene and collectively consider opportunities to carry on this important work beyond the annual meeting. Members of DIA’s Annual Meeting Planning Committee who represent the Patient Engagement track will host an interactive forum to discuss key take-home messages discussed throughout the four days of DIA 2019 and implications for the future of patient engagement.
Learning Objective : Identify themes and emerging trends relevant to partnering with patients and expanding how we incorporate the patient’s voice into drug development; Describe practical solutions for applying learnings from DIA 2019; Identify opportunities to communicate and share findings across stakeholder groups, foster adoption of the learnings, and continue to advance our shared understanding of outcomes of existing and emerging patient engagement work; Discuss implications for the future.
Speaker(s)
Facilitator
K. Kimberly McCleary
The Kith Collective, LLC, United States
Founder and Chief Executive Officer
Facilitator
Jennifer Helfer, PhD
Viridian Therapeutics, Inc., United States
Senior Director, Patient Advocacy and Engagement, Corporate Affairs
Facilitator
Deborah Collyar
Patient Advocates In Research (PAIR), United States
President
Facilitator
Steven L. Roberds, PhD
Tuberous Sclerosis Alliance, United States
Chief Scientific Officer
Facilitator
Kristin Voorhees, MA
Ultragenyx, United States
Director, Patient Advocacy
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