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Improving the Trial Experience for Rare Disease Patients: Identifying and Overcoming Obstacles
Session Chair(s)
Kelly Franchetti, RN
Global Head- Growth and Insights, Savvy Cooperative, United States
Participants will engage in an “overcoming obstacles” activity designed to encourage collaboration among rare disease patients, trial sponsors, and advocates. You will identify obstacles to trial participation and work to develop creative solutions.
Learning Objective : Describe valuable and detailed input from patients on clinical trial design; Design patient interactions that encourage collaboration among patients, sponsors, and advocacy group; Explain how to optimize clinical trials to ensure they meet the needs of rare disease patients.
Speaker(s)
Patient Perspective
President, Project Alive - Hunter Syndrome, United States
Industry Perspective
Global Head- Growth and Insights, Savvy Cooperative, United States
Academic Perspective
Director, R&D Patient Engagement, CSL Behring, United States
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