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Patient Observation Versus Patient Engagement: Optimizing Development
Session Chair(s)
Nadina Jose, MD
Assistant Professor, School of Health Professions, MS Clinical Research Program, Rutgers, The State University of New Jersey, United States
This forum will identify a sponsor that uses a Patient Leadership Council to regularly and continuously receive patient input, a patient group that has a collaborative relationship with a sponsor to continuously share patient insights, a sponsor that has seen landscape change and can share the impact and a healthcare provider (HCP) to discuss their historical collaboration with sponsors to collect and share patient insights.
Learning Objective : Identify how healthcare providers have historically collaborated to share patient insights and how can they help advance patient engagement; Discuss how medical science liaisons engage with the healthcare providers to develop meaningful scientific exchanges while generating insights about patients; Discuss processes that help develop a comprehensive patient engagement program, and present experiences with patient communities.
Speaker(s)
Alexandra Malinowski, PHARMD
Senior Medical Science Liasion, Northeast, Ultragenyx Pharmaceutical Inc., United States
Ellen Coleman, MPH, MS
President and Chief Executive Officer, VOZ Advisors, United States
Mark Summers
President, Patient Engagement Division, WIRB-Copernicus Group (WCG), United States
Kristin Smedley
President, Curing Retinal Blindness Foundation, United States
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