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Maintaining Patient Engagement in the Development of Patient-Reported Outcome (PRO) Measures
Session Chair(s)
Sarah Clifford, PHD, MSC
Senior Principal, Patient-Centered Outcomes, ICON Clinical Research, Inc, United States
This session outlines the key issues in maintaining and maximizing patient engagement at all stages of the development of PRO and ePRO measures, with examples drawn from our experience of developing PRO measures. Recommendations are made regarding the most appropriate qualitative and quantitative approaches and a framework suggested for quantifying the degree of patient engagement during the multiple stages of scale development.
Learning Objective : Recognize the opportunities for patient engagement through all stages of PRO development; Evaluate the degree of meaningful patient engagement in PRO development.
Speaker(s)
Christine McSherry, BSN, RN
Chief Executive Officer, Casimir LLC, United States
Michele Rhee, MBA, MPH
Vice President, Patient Affairs and Advocacy, X4 Pharmaceuticals, United States
Alison Skrinar, PHD, MPH
Vice President, Clinical Outcomes Research and Evaluation, Ultragenyx Pharmaceutical, United States
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