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A New Ecosystem: The Nature of Relationships Between Patient Advocacy Groups and Sponsors
Session Chair(s)
Kristin Voorhees, MA
Director, Patient Advocacy, Ultragenyx, United States
This interactive session will convene three distinct patient advocacy groups (PAGs) who will discuss how their unique business models are being used to build long-term relationships with sponsors. The session will also describe how PAGs resource, fund and execute interactions and collaborations with sponsors and discuss opportunities, challenges and solutions arising from the business side of patient engagement, such as maintaining independence, understanding potential conflicts of interest and ensuring transparency
Learning Objective : Identify three distinct patient advocacy group (PAG) business models being used to build long-term relationships with sponsors; Describe how PAGs resource, fund and execute interactions and collaborations with sponsors; Discuss opportunities, challenges and solutions arising from the business side of patient engagement, such as maintaining independence and ensuring transparency.
Speaker(s)
Alice Bast
CEO, Beyond Celiac, United States
Katie Jensen, MPA
Director of Corporate Relations, Beyond Celiac, United States
Suzanne Schrandt, JD
Founder, Chief Executive Office and Chief Patient Advocate, ExPPect, United States
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