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Patient Engagement: 4 W's and an H
Session Chair(s)
Jane Elizabeth Myles, MSc
Program Director
Decentralized Trials and Research Alliance (DTRA), United States
Patient engagement is a hot topic across the industry and has potential touchpoints throughout the life cycle of a product or portfolio. Because it's a new idea in product development, we want to hear from those who've used patient engagement techniques while planning and executing development programs, as well as during and post approval. We are seeking clear examples on why, what, when, who, and how these engagement tactics were used and the value they added. Ideally, this session will include an update from the TUFTS/ DIA working group on Patient Engagement and provide some benchmarking data about what's happening across industry. When these tactics were used, what changed in the planning and execution of programs? And what surprises arose, both in the process of engagement and in the outcomes?
Learning Objective : Provide data on patient engagement practices across industry; Prepare 'map' of potential points of engagement across product life cycle; Discuss case studies about patient engagement tactics and what was learned, applied based on the outcomes.
Speaker(s)
Driving Engagement in All Phases of Alzheimer’s Disease: Creating Lasting Engagement and Achieving Trial Success
Barbara Bernik Zupancic, MBA, MSc
Worldwide Clinical Trials, United States
Director, Patient Recruitment
From Design to Dissemination: How iConquerMS Engages People With MS Throughout the Research Continuum
Hollie Schmidt, MS
Accelerated Cure Project, United States
Vice President of Scientific Operations
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