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Online Patient Networking
Session Chair(s)
Lindsay McNair, MD, MPH, MS
Principal Consultant, Equipoise Consulting, United States
This session explores the use of online patient communities and networks in clinical research and development. We will explore the use of social listening to gain insights into patient conditions, issues, and concerns and how this can be useful in designing clinical trials and engagement programs. We will also explore the development of online communities and the involvement of pharma – what is appropriate involvement for pharma companies to ensure communities and Twitter chats continue to be valuable and popular with participants. We will also explore the kind of information these communities can reveal about unmet needs and current treatments.
Learning Objective : Identify the potential and limitations of tapping into online patient communities to develop insights for study design and endpoints.
Speaker(s)
Online Patient Networking: Should We Have Concerns for Impact on Clinical Research?
Principal Consultant, Equipoise Consulting, United States
Engaging Patient Social Networks in the Design of Clinical Studies
Co-founder and Chief Executive Officer, MyHealthTeams, United States
2.5 Billion Opinions from 50 Million Health Care Users: A Guide to Health-Related Social Media
Research Scientist, Evidera, United Kingdom
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