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Movie Documentary: Here.Us.Now.
Session Chair(s)
Lesa Mitchell
CEO
Marion Kauffman Foundation, United States
Hearing the patient voice, and understanding the patient perspective, are cornerstones of the drug development process. This year’s DIA Annual Meeting presents Here.Us.Now, a movie documentary on Wednesday evening. Wine and light refreshments will be available. An expert panel discussion will follow after the movie showing.
Here.Us.Now. is directed by Emmy award-winning filmmaker Rudy Poe, and is a story of three realities in the United States today. First, the patient advocate’s role in driving changes in policy and popular sentiment—we saw this in the AIDs movement and hope for the same in pediatric and rare diseases. Second, the Myelin Repair Foundation, Michael J. Fox Foundation, Army of Women are depicted and are pursuing models of patient-driven R&D partnerships with academic and private sector scientists. These models, which are intent on utilizing a patient focus to accelerate research outcomes while also driving policy changes through their unique funding models, have grown significantly and are achieving critical outcomes. Last but not least, this documentary underscores the story of the Hempels, who represent a patient/parent-conducted R&D model. The intent of this documentary is to underscore the need for accelerating the alternative pathways from new discoveries to curing patients.
Seats are limited: Advanced ticketing: First come, first serve. To obtain tickets to screen HERE.US.NOW, please visit the Attendee Registration Desk no later than Tuesday at 5:00pm **Please note that the DIA Courtesy Shuttle will not be available.
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