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S27 : Discussion with Patients for Development of Rare Diseases ~For Improve Drug Loss in Japan~
Session Chair(s)
Harumasa Nakamura, MD, PHD
Director of Department of Clinical Research Support, , National Center of Neurology and Psychiatry, Japan
Speaker(s)
Tomoaki Shinohara
, Parent of a Patient with Mitochondrial Disease, Japan
Is the Patient’s Wish to Live Shared with You?
Osamu Kano
Professor, Department of Neurology, Toho University Faculty of Medicine, Japan
Developing a New Pipeline to Overcome the Drug Lag of Amyotrophic Lateral Sclerosis
Shinichi Nishiuma, MD
Chief Executive Director, NISHIUMA CO., LTD., Japan
Aiming to Solve Drug Loss - Challenges of Aculys Pharma-
Yuji Matsukura
Director, Office of Vaccine and Blood Products, Pharmaceuticals and Medical Devices Agency (PMDA), Japan
MHLW's Action to Enhance Access to Orphan Drugs