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Not Your Grandma's Patient Advocacy Group Anymore
Session Chair(s)
Laura Kolaczkowski
Lead Patient Representative, Co-Principal Investigator
iConquerMS PPRN, PCORnet, United States
This forum, subtitled The Growth of Relational, Regulatory and Research Equity in Modern Patient Advocacy Groups, will share end-to-end stories of how advocates are gaining influence with researchers, policy makers, and regulators to drive the approvals of new therapies. The panelists will tell their stories from the point of view of the advocates who have organized resources differently to increase the volume and speed of research in their disease, and to address gaps in the environment in order to speed review and approvals. Panelists will offer practical advice on how to build a coalition of patients, researchers, and family care physicians to navigate promising new therapies through the regulatory process and ultimately to patients.
Learning Objective : Discuss how to work with patient advocacy groups to develop, assess, and approve new medicines.
Speaker(s)
Panelist
Upal Basu Roy, PHD, MPH
LUNGevity Foundation, United States
Vice President of Research
Panelist
Melissa Hogan, JD
Project Alive, United States
Founder/President
Panelist
K. Kimberly McCleary
The Kith Collective, LLC, United States
Founder and Chief Executive Officer