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On the Soapbox: Good for People and Good for Research - Individuals as Research Partners
Session Chair(s)
Dawn Barry, MBA
President and Co-Founder
LunaPBC, United States
The intersection of data privacy and an acknowledgement that research data lacks depth, diversity, and real-world information are driving new health database models. The benefits of promoting people from subjects to research partners will be covered.
Learning Objective : Identify new models in patient engagement and data stewardship towards richer research; Analyze how patient privacy and data connectivity can co-exist; Explore the benefits of patients as partners in research versus research subjects.
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