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A New Ecosystem: The Nature of Relationships Between Patient Advocacy Groups and Sponsors
Session Chair(s)
Kristin Voorhees, MA
Director, Patient Advocacy
Ultragenyx, United States
This interactive session will convene three distinct patient advocacy groups (PAGs) who will discuss how their unique business models are being used to build long-term relationships with sponsors. The session will also describe how PAGs resource, fund and execute interactions and collaborations with sponsors and discuss opportunities, challenges and solutions arising from the business side of patient engagement, such as maintaining independence, understanding potential conflicts of interest and ensuring transparency
Learning Objective : Identify three distinct patient advocacy group (PAG) business models being used to build long-term relationships with sponsors; Describe how PAGs resource, fund and execute interactions and collaborations with sponsors; Discuss opportunities, challenges and solutions arising from the business side of patient engagement, such as maintaining independence and ensuring transparency.
Speaker(s)
The Business of Patient Engagement
Alice Bast
Beyond Celiac, United States
CEO
Necessary Relationships: The Effect of Pharmaceutical Relationships on Rare Disease Patient Advocacy Organizations
Katie Jensen, MPA
Beyond Celiac, United States
Director of Corporate Relations
A Day in the Life: Making Patient Engagement Real
Suzanne Schrandt, JD
ExPPect, United States
Founder, Chief Executive Office and Chief Patient Advocate
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