In 2006, DIA was among the first organizations to recognize the importance of patient involvement in drug development and launched its first Patient Fellowship Program. Since then, the role patients can play in therapeutic product R&D has exploded. DIA continues to lead the way, providing input and insights into the evolution of therapeutic product development, and driving towards improved health and well-being throughout the world. Read On.


DIA Considerations Guide: Download Now

Considerations Guide

Developed as part of DIA’s Study of Patient-Centric Initiatives in Drug Development, the Considerations Guide was designed as a practical resource for pharmaceutical companies as you launch or advance patient-centered initiatives that support health care product research and development.

Get the Guide

Patient Engagement Study: Download Now

Patients Webinar

Read this executive summary and detailed study results that include key insights in the following areas: adoption of patient-centric initiatives by pharmaceutical and biotech companies, barriers to adoption of patient-centric initiatives, comparative analytics and results of patient-centric initiatives.

Download Study Reports

DIA Releases Results of Patient Engagement in Drug Development Study

The DIA study, conducted in partnership with Tufts University, found that half of pharmaceutical and biotech companies surveyed implementing patient-centric drug development initiatives; but measurement and success vary widely. However, barriers such as risk tolerance, lack of staff, time, and budget have constrained implementation. Furthermore, quantifying results is challenging as there is limited comparative analytic data that support specific methods of patient-centricity.

Read the Full Release

Patient Engagement

Visual Model of Patient Engagement

Join the Patient Engagement Conversation

Patient Engagement Community

DIA Members interact in this exclusive online forum, hosting engaging discussions, webinars and connecting with Patient Engagement stakeholders globally.  Already a DIA Member? Join the DIA Patient Engagement Community.

Why DIA Membership?

Clinical & Regulatory Operational Excellence Forum

Mercure Hotel MOA Berlin

Clinically Meaningful Outcomes in Early Alzheimer Disease A Consortia-Driven Approach to Identifying What Matters to Patients

By Michael T. Ropacki, PhD; Kristin Hannesdottir, PhD; Suzanne Hendrix, PhD; Mark Forrest Gordon, MD; Diane Stephenson, PhD; Stephen Joel Coons, PhD; Robert A. Stern, PhD

Numerous statistically derived composite measures have recently been proposed as clinical outcome assessments (COAs) for...

DIA/EFGCP/EMA Conference on How to Optimise Children’s Access to Innovative Medicines

European Medicines Agency

PMDA’s “Rational Medicine” Initiative

By Tatsuya Kondo, MD, PhD

Throughout my clinical practice experience, I have always believed that medical care must be administered on the basis of the...

DIA Annual Canadian Meeting

Ottawa Marriott Hotel

DIA Patient Engagement in Drug Development Study

By Elizabeth Lincoln, DIA Global Director of Engagement

DIA, the leading professional community and knowledge exchange for global health care product development, announced today...

Metrics in Patient-Centered Drug Development Conference

Hilton Washington DC/Rockville Hotel & Executive Meeting Ctr.

Not Another Article on Patient Centricity?!

By Dr. Lode Dewulf, David Haerry, Jill Donahue, Guy Yeoman

As you have undoubtedly noticed, something Big is happening in health care: Patient Centricity! This new Big Thing is heralded...

DIA/FDA Oligonucleotide-Based Therapeutics Conference

Bethesda North Marriott Hotel and Conference Center

Study Insights: Patient Engagement in Drug Development

The Drug Information Association (DIA) has released initial results of its Study of Patient-Centric...

DIA Patient Engagement Community

By Mary Murray, Colleen Zak

DIA’s Patient Engagement Community (PEC) is an energetic, global, collaborative community of patient advocates...

14th DIA Japan Annual Meeting 2017

Tokyo Big Sight