DIA/EFGCP/EMA Conference on How to Optimise Children’s Access to Innovative Medicines

United in the goal of increasing the availability of new medicines to paediatric patients, how can we leverage examples from past successes to overcome future barriers?

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Session 4 HOW ARE CHILDREN, CARERS AND FAMILIES CONTRIBUTING TO THE DECISION MAKING?

Session Chair(s)

Katie Rizvi

Founder, Little People Association & Temerarii Club

The Romanian Community of Cancer Survivor Adolescents and Young Adults, Romania

The session will focus on both the technical and practical aspects of involving children and young persons’ advisory groups in decision making processes whether at regulatory, health technology assessment (HTA) or medicines research and development (R&D) levels. Discussions will include the point of view and expectations of different stakeholders.

Speaker(s)

Engagement with young patients

Nathalie Bere, MPH

European Medicines Agency, Netherlands

Patient Engagement

Yvonne Schmidt, PhD

Federal Joint Committee (G-BA), Germany

Scientific Advisor, Pharmaceuticals Department

Active Involvement of Children and Young People In Clinical Research Design

Pamela Dicks, PhD

Scottish Children's Research Network (ScotCRN), United Kingdom

Network Manager

Anna Sherriffs

Young Persons’ Advisory Group (YPAG) Scotland, United Kingdom

Young Patient Advocate

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