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Millennium Chelsea Harbour Hotel

Sep 19, 2017 8:00 AM - Sep 20, 2017 5:00 PM

Chelsea Harbour, London, SW10 0XG, United Kingdom

Registry Workshop - Preparing for Future Requirements

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Session 5: Biobanking and Genome Data – Risks and Opportunities

Session Chair(s)

Michael Busch-Sørensen

Michael Busch-Sørensen

Board Member

Danish Society for Pharmacoepidemiology, Denmark

David Haerry

David Haerry

Co-Chair Advisory Committee

EUPATI Foundation,European AIDS Treatment Group, Belgium

Tissue and DNA are special types of “data” which carries high amount of data and with that a lot of potential benefit for the patients, while at the same time the same data contains major risk for the same patients from a data privacy point of view. This session will give an insight in the structure and function of a country wide biobank covering a whole population, integrated with the healthcare system and linked to all kinds of registries. The benefit and risks with tissue and DNA is then addressed from a patient and ethical committee point of vies.

Speaker(s)

Benefit and Challenges from industry perspective

Torben Steiniche

Aarhus University Hospital, Denmark

Head of Department and Professor, Department of Histopathology

Estrid Høgdall

National Biobanking - Biobank Governance Models

Estrid Høgdall

Danish Biobank, Herlev Hospital, Denmark

Clinical Senior Investigator

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