Back to Agendas
WHO OWNS MY HEALTH DATA?
Session Chair(s)
Duane Schulthess, MBA
Chief Executive Officer
Vital Transformation LLC, United States
Who has the right to use patient data, and who gets to decide how it's used? The European Parliament in March of 2014 overwhelmingly voted for a data protection policy that could limit the use of existing health databases without an opt-in by patients, but the US has an approach to data that allows institutions to harness their captured medical information as long as that usage falls within established confidentiality guidelines. What are the implications if health data is not allowed to be harnessed as easily in Europe as it is in the US and increasingly, Asia? What is the correct path forward to make sure data is harnessed to provide the best patient outcomes, but confidentiality is preserved?
Speaker(s)
Harnessing Patient Data to Develop New Therapies
John Parkinson
National Institute for Cardiovascular Outcomes Research, United Kingdom
Who Owns My Data? Data Protection When Faced with Terminal Illness
Bettina Ryll
MPNE, Vision Zero Cancer, Sweden
Member of the First EU Cancer Mission Board
EU Health Data and Research
Nathalie Kayadjanian
Science Europe , Belgium
Ruxandra Draghia- Akli
European Commission- Research DG, Belgium
Director of the Health Directorate
Have an account?