Back to Agenda
Measuring the Impact of Patient Engagement: What to Ask Depends on Who You Ask
Session Chair(s)
Roslyn Schneider, MD, FACP
Vice President, Head of Global Patient Affairs
Biomarin Pharmaceuticals Inc., United States
Meaningful engagement with patients is planned with a purpose, and as it is more fully integrated into the medical product life cycle, measuring its impact is increasingly important. Patients, sponsors, and regulators want to know if their expected outcomes have been achieved. How to measure the impact of patient engagement depends on your viewpoint. In this session, stakeholders discuss their perspectives on the outcomes they might expect from patient engagement and what types of measures can signal achievement. A case example of evaluating the impact of a patient engagement effort from the dual perspectives of patient satisfaction and clinical development deliverables will be examined.
Learning Objective : Describe the relationship of expected outcomes of patient engagement to impact measurements; Identify one outcome of patient engagement that is important to each key stakeholder; Discuss possible measures to assess the impact of patient engagement from the perspective of each key stakeholder.
Speaker(s)
Thank You! The Power of Gratitude to Improve Clinical Development Quality
Mary Murray, MBA, MS
Independent Consultant, United States
Family Caregiver
Patient Engagement
Ellen Coleman, MPH, MS
VOZ Advisors, United States
President and Chief Executive Officer
Patient Perspective
Suzanne Schrandt, JD
ExPPect, United States
Founder, Chief Executive Office and Chief Patient Advocate
Have an account?