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Session 7: Sustainability and Public Funding
Session Chair(s)
Maren von Fritschen, PharmD
Head EU Regulatory Policy
Moderna, Netherlands
Sustainability of a registry is an issue faced by most registries following the initial phase of funding for their creation. Different sources of funding, sometimes temporary or transitional, often co-exist. Sustainability should generally be based on a development strategy, a professional management structure and the development of clear partnership with stakeholders to safeguard independence. Experiences and challenges from successful registries in ensuring sustainability will be presented for discussion.
Speaker(s)
Torben Steiniche
Aarhus University Hospital, Denmark
Head of Department and Professor, Department of Histopathology
Registries & Repositories – Perspectives of a Research Funder
Aysim Yilmaz
Swiss National Science Foundation, Switzerland
Head, Division Biology&Medicine
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