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Session 1: Profile - The Many Faces of Patients and Patient Engagement
Session Chair(s)
Carl Chiang
Director, Clinical Development
Zinfandel Pharmaceuticals, United States
There is a growing awareness that the input of the patient is critical to the development of treatments that, beyond being effective and safe, address important medical needs and improve the quality of patient lives. We hear about patient engagement, patient advocacy and patient-centric practice – – are they the same and what do these endeavors mean to patients, to researchers, to regulators? And who is the patient? Through facilitated discussion with an expert panel, workshop participants will examine these important questions that are key to implementing effective patient engagement efforts.
Speaker(s)
Moderator
James Valentine, JD, MHS
Hyman, Phelps & McNamara, PC, United States
Director
Lode Dewulf
Corvalus, Belgium
Patient and Medical Affairs Consultant
Mary Dwight
Cystic Fibrosis Foundation, United States
Vice President for Government Affairs
Megan L. O'Boyle
Phelan-Mcdermid Syndrome Foundation, United States
PI, PMSIR (patient registry), PMS_DN (PCORI data sharing project)
Suzanne Schrandt, JD
ExPPect, United States
Founder, Chief Executive Office and Chief Patient Advocate
Thomas P. Sellers, MPA
Millennium: The Takeda Oncology Company, United States
Senior Director, Patient Advocacy & Corporate Philanthropy
Discussion 1: Engagement, Advocacy, Patient-centric Practice - Are They the Same? What do These Endeavors Mean to Patients, to Researchers, to Regulators?
Open Floor Discussion
United States
Discussion 2: Who is the Patient? Patients and Patient Groups; Patients and Caregivers; Patients with Rare Diseases, with Chronic Disease, and with Serious Acute Disease
Open Floor Discussion
United States
Discussion 3: Patient Populations - Navigating Stages of Maturation
Open Floor Discussion
United States
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