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Public-Private Partnerships: An Innovative Strategy for Patient Registries
Session Chair(s)
Nancy A Dreyer, PhD, MPH, FISPE
Founder
Dreyer Strategies LLC, United States
Public-private partnerships (PPPs) can offer an innovative, efficient approach to using registries for comparative effectiveness research (CER). This workshop will examine developing registries through PPPs and present examples of PPPs that support registries for effectiveness research.
**Due to workshop format, seating will be limited and will be available on a first come, first served basis.
The San Diego Convention Center has stringent regulations on maximum room capacities, and they are strictly enforced. Once all seats are occupied, DIA will be required to close the workshop, and no more participants will be admitted. Interested attendees are encouraged to arrive at workshops early in order to ensure seating. Please note, as a workshop with interactivity, this offering will not be recorded.
Learning Objective : Discuss the strengths and limitations of using public-private partnerships (PPPs) to support registries; Identify considerations for developing a registry through a PPP, including steps for setting up a partnership, challenges such as data ownership and communication, and key success factors; Describe current uses of PPPs for research on effectiveness and outcomes.
Speaker(s)
Results of the ADVANCE Survey on Models of Partnerships for Observational Studies
Peter Richard Arlett, MD, FFPM, FRCP
European Medicines Agency, Netherlands
Head Data Analytics and Methods Task Force
Facilitator
Michael Schatz, MD, MS
Kaiser Permanente San Diego/American Academy of Allergy Asthma and Immunology, United States
Department of Allergy
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