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International Cooperation in Rare Disease Research
Session Chair(s)
Paul Lasko, PhD
Department of Biology
McGill University, Canada
This forum will address the role of the International Rare Diseases Research Consortium (IRDiRC) in fostering international collaboration in rare disease research and discuss recent progress toward identifying rare disease genes and developing new therapeutics. We will also examine a proposed cooperation network in Asia Pacific in orphan drug clinical trials.
Learning Objective : Define the role of the International Rare Diseases Research Consortium (IRDiRC) in fostering international collaboration in rare disease research; Describe recent progress toward identifying rare disease genes and developing new therapeutics; Identify opportunities for interested organizations to join IRDiRC.
Speaker(s)
Panelist
Paul Lasko, PhD
McGill University, Canada
Department of Biology
Facilitate the Accessibility via Asia-Pacific Collaboration Network of Clinical Trials for Orphan Drugs
Chih-Hwa Wallace Lin, PhD
Board of Science and Technology, Executive Yuan, ROC, Taiwan
Researcher and Acting Director, Biotechnology Unit
EMA Perspective
Jordi Llinares Garcia, MS
European Medicines Agency, Netherlands
Head of Research and Innovation
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