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Session 5: Integrating Community Engagement in Clinical Trials
Session Chair(s)
Barbara Goodman, MBA
President and Chief Executive Officer
Cures Within Reach, United States
Countless people talk about the importance of improving community engagement and many organizations are working in this area, but what specific efforts are working better than others? What can we learn from the positive outcomes and mistakes that have been made? This session will share perspectives on the relationships required, the multi-direction education involved in relationship building, and the importance of multi-lateral support for the various stakeholders, including patients and caregivers, faith-based organizations, social services and healthcare community organizations, hospitals and research institutions, clinicians, and the sponsors of clinical trials. In addition, this session will discuss the challenges and barriers facing certain populations in healthcare that generally impact clinical trial participation.
Learning Objective :
At the conclusion of this session, participants will:
- Identify at least one example of community-based organizational engagement that has worked well
- Explain at least one example of community-based organizational engagement that has NOT gone well and the way to improve and learn from the situation
- Recognize a new or more nuanced view from patients and the various community-based organizations involved
Speaker(s)
Panelist
Shonta Chambers
Patient Advocate Foundation, United States
Executive Vice President-Health Equity Initiatives and Community Engagement
Panelist
LaShell Robinson, MS
Takeda Pharmaceutical Limited, United States
Director, Diversity & Inclusion in Clinical Trials
Panelists
Pat Merryweather-Arges, MA
Project Patient Care, United States
Executive Director
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