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Real-World Evidence Conference

Translating Insights into Real-World Value.


Exhibitor Event/Non-CE: Sponsored Coffee Corner

Session Chair(s)

Victoria  Hodgkinson, PhD

Victoria Hodgkinson, PhD

  • Scientific Director
  • Canadian Neuromuscular Disease Registry, University of Calgary, Canada

*This course requires a Separate RSVP.

Applying Disruptive Social Science Technology for Robust Data Outcomes

Research programs regularly fail or miss their metrics due to disorganized, siloed or fragmented patient communities; competing priorities across stakeholders; and waning enthusiasm and sustainability. When stakeholder incentives and priorities are aligned and fully understood, programs can be designed that motivate participation and drive successful outcomes. In this Coffee Chat, Lumiio's Victoria Hodgkinson will speak about Lumiio's experience in launching global data programs that use an innovative approach to using fully integrated data, ultimately putting social science before data science.

Victoria has extensive and varied experience in data analysis and publishing findings utilizing real-world data. She is a recognized global expert in patient registries following her work on large-scale international projects such as the Global SMA Registry and the Global Acromegaly Registry.

Click here to RSVP!

Learning Objective : Featured Topics:
  • Should social science lead the data science?
  • Using disruptive technology to drive patient outcomes
  • Building community engagement and sustainability
  • Designing successful digital health programs