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DIA 2021 Global Annual Meeting


Meaningful Patient Engagement Highlighted Through Patient Preference Studies and Core Outcome Sets

Session Chair(s)

Kristin  Bullok, PhD

Kristin Bullok, PhD

  • Benefit-Risk Management Scientist, Global Patient Safety
  • Eli Lilly and Company, United States
This session will present industry and academic partner perspectives on best practices and lessons learned in relation to patient involvement. We will look at a proposed framework that covers key considerations when designing, conducting and applying the results of a fit-for-purpose preference study, how patients can be meaningfully engaged in the design and implementation of patient preference studies, as well as during core outcome set development.
Learning Objective : Describe how a framework for patient preference studies can support the discussion between industry, regulators, HTA bodies, and payers about preference studies intended to inform medical product decision-making; Discuss how a framework for patient preference studies can be useful to preference study research teams aiming to conduct a preference study to inform medical product decisions.

Speaker(s)

Sheila  Dickinson, MSc

A Framework for Patient Preference Studies to Inform Medical Product Decision-Making: Proposal from IMI PREFER

Sheila Dickinson, MSc

  • IMI PREFER Assistant Project Leader & Global Benefit-Risk Lead
  • Novartis Pharma AG, Switzerland
Annie P. Tran, MPH

Building Symbiotic Patient Relationships: Strategies for Meaningful Patient Engagement in Core Outcome Set Development

Annie P. Tran, MPH

  • Senior Research Associate
  • Center for Medical Technology Policy (CMTP), United States
Gwenda  Simons, PhD, MA

How and When to Engage Patients and Patient Groups to Improve Survey Recruitment and Administration: Lessons Learned from the IMI-PREFER Rheumatoid Arthritis Case Study

Gwenda Simons, PhD, MA

  • Research Fellow, Rheumatology Research Group
  • Institute of Inflammation and Ageing, University of Birmingham, United Kingdom