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Meaningful Patient Engagement Highlighted Through Patient Preference Studies and Core Outcome Sets
Session Chair(s)
Kristin Bullok, PhD
Benefit-Risk Management Scientist, Global Patient Safety
Eli Lilly and Company, United States
This session will present industry and academic partner perspectives on best practices and lessons learned in relation to patient involvement. We will look at a proposed framework that covers key considerations when designing, conducting and applying the results of a fit-for-purpose preference study, how patients can be meaningfully engaged in the design and implementation of patient preference studies, as well as during core outcome set development.
Learning Objective : Discuss how a framework for patient preference studies can strengthen considerations about the design, conduct and application of results of a fit-for-purpose preference study; Describe how patients can meaningfully collaborate as research partners on patient preference studies; Identify the different opportunities for patient engagement during core outcome set development that are crucial to developing cohesive and relevant core sets.
Speaker(s)
A Framework for Patient Preference Studies to Inform Medical Product Decision-Making: Proposal from IMI PREFER
Sheila Dickinson, MSc
Novartis Pharma AG, Switzerland
Global Benefit-Risk Lead
Building Symbiotic Patient Relationships: Strategies for Meaningful Patient Engagement in Core Outcome Set Development
Annie P. Tran, MPH
Center for Medical Technology Policy (CMTP), United States
Senior Research Associate
How and When to Engage Patients and Patient Groups to Improve Survey Recruitment and Administration: Lessons Learned from the IMI-PREFER Rheumatoid Arthritis Case Study
Gwenda Simons, PhD, MA
Institute of Inflammation and Ageing, University of Birmingham, United Kingdom
Research Fellow, Rheumatology Research Group
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