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DIA 2021 Global Annual Meeting
Meaningful Patient Engagement Highlighted Through Patient Preference Studies and Core Outcome Sets
Kristin Bullok, PhD
- Benefit-Risk Management Scientist, Global Patient Safety
- Eli Lilly and Company, United States
This session will present industry and academic partner perspectives on best practices and lessons learned in relation to patient involvement. We will look at a proposed framework that covers key considerations when designing, conducting and applying the results of a fit-for-purpose preference study, how patients can be meaningfully engaged in the design and implementation of patient preference studies, as well as during core outcome set development.
Learning Objective : Describe how a framework for patient preference studies can support the discussion between industry, regulators, HTA bodies, and payers about preference studies intended to inform medical product decision-making; Discuss how a framework for patient preference studies can be useful to preference study research teams aiming to conduct a preference study to inform medical product decisions.
A Framework for Patient Preference Studies to Inform Medical Product Decision-Making: Proposal from IMI PREFER
Sheila Dickinson, MSc
- IMI PREFER Assistant Project Leader & Global Benefit-Risk Lead
- Novartis Pharma AG, Switzerland
Building Symbiotic Patient Relationships: Strategies for Meaningful Patient Engagement in Core Outcome Set Development
Annie P. Tran, MPH
- Senior Research Associate
- Center for Medical Technology Policy (CMTP), United States
How and When to Engage Patients and Patient Groups to Improve Survey Recruitment and Administration: Lessons Learned from the IMI-PREFER Rheumatoid Arthritis Case Study
Gwenda Simons, PhD, MA
- Research Fellow, Rheumatology Research Group
- Institute of Inflammation and Ageing, University of Birmingham, United Kingdom