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Patient-Centric Engagement Strategies
Session Chair(s)
Kristina Bowyer
Vice President, Patient Advocacy & Engagement
Ionis Pharmaceuticals, Inc., United States
This session will provide insights on stakeholder engagement for clinical trials from beginning to end by identifying and incorporating the best tools and resources to support a shift toward virtual research. Recognizing the need to keep patients engaged, the session will propose a framework to support patient adherence for digital health technologies, as well as identify communication tools to support recruitment. Additionally, the session will identify avenues to collect patient input on study design that overcome potential internal barriers to patient engagement.
Learning Objective : Provide insights on stakeholder engagement for clinical trials from beginning to end; Recognize the need to keep patients engaged using a framework to support patient adherence for digital health technologies; Identify avenues to collect patient input on study design that overcome potential internal barriers to patient engagement.
Speaker(s)
Community Voices in Research (CVR): A Patient-Centric Approach to Study Design Phase Through Community Research Network
Rosaura P Vidal, MPH
National Hemophilia Foundation, United States
Clinical Research Education Specialist
Managing Patient Adherence for Digital Devices
Aman Thukral, MPharm, MS
AbbVie, Inc., United States
Head of Digital Operations & Clinical Systems Data and Statistical Science (DSS)
Communicating at the Speed of 0-17K: Facilitating Rapid Research Recruitment in a Pandemic
Jenny Cook, MPH
Duke Clinical Research Institute, United States
Study and Project Engagement Specialist
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