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Digital Technology in Clinical Trials

This event is now offered in a new entirely virtual format.


Session 4 Track 3: Access to Consumer Data in a Privacy Concerned World

Session Chair(s)

Kristen  Valdes

Kristen Valdes

  • Founder and Chief Executive Officer
  • B.Well Connected Health, United States
This session will provide an overview of the new consumer directed data policies from ONC and CMS called Interoperability and Information Blocking rules. The panel will provide detailed statistics and findings on consumer data access from both providers and payers and how the new rules will change the requirements and technology for access and use of data. The panel will also touch on consumer trust and best practices on informed consent in this privacy-concerned era.
Learning Objective :

At the conclusion of this session, participants should be able to:

  • Identify the new rules and regulations around consumer access to data and sharing and their role
  • Understand the data types and methods by which data can be exchanged today and the limitations of that data
  • Articulate new business models allowable under these rules as they pertain to consumer consent to data

Speaker(s)

Ryan  Howells, MHA

Speaker

Ryan Howells, MHA

  • Principal
  • Leavitt Partners / CARIN Alliance, United States
Kristen  Valdes

Speaker

Kristen Valdes

  • Founder and Chief Executive Officer
  • B.Well Connected Health, United States
Deven  McGraw, JD, LLM, MPH

Speaker

Deven McGraw, JD, LLM, MPH

  • Chief Regulatory Officer
  • Ciitizen, United States