We are updating our Privacy Policy and Terms and Conditions to help you clearly understand how your personal information is collected, stored and managed. Learn More
Menu Back toMaintaining-Patient-Engagement-in-the-Development-of-Patient-Reported-Outcome-PRO-Measures

DIA 2018 Global Annual Meeting

The DIA 2018 Global Annual Meeting brings together thousands of innovators from around the globe.


Maintaining Patient Engagement in the Development of Patient-Reported Outcome (PRO) Measures

    Session Chair(s)
      Sarah  Clifford, PhD, MSc

      Sarah Clifford, PhD, MSc

      • Senior Principal, Patient-Centered Outcomes
      • ICON Clinical Research, Inc, United States
    This session outlines the key issues in maintaining and maximizing patient engagement at all stages of the development of PRO and ePRO measures, with examples drawn from our experience of developing PRO measures. Recommendations are made regarding the most appropriate qualitative and quantitative approaches and a framework suggested for quantifying the degree of patient engagement during the multiple stages of scale development.
    Learning Objective : Recognize the opportunities for patient engagement through all stages of PRO development; Evaluate the degree of meaningful patient engagement in PRO development.
    Speaker(s)
      Christine  McSherry, BSN, RN

      Ways in Which Patient and Caregiver Recorded Outcomes and Assessments Will Affect Regulators, Industry, and Patients and Payers in the Coming Years

      Christine McSherry, BSN, RN

      • Executive Director
      • Jett Foundation, United States
      Michele  Rhee, MBA, MPH

      Patient Affairs Perspective

      Michele Rhee, MBA, MPH

      • Head of Patient Affairs
      • Enzyvant, United States
      Alison M. Skrinar

      Clinical Outcomes

      Alison M. Skrinar

      • Executive Director, Clinical Outcomes Research and Evaluation
      • Ultragenyx Pharmaceutical, United States