In 2006, DIA was among the first organizations to recognize the importance of patient involvement in drug development and launched its first Patient Fellowship Program. Since then, the role patients can play in therapeutic product R&D has exploded. DIA continues to lead the way, providing input and insights into the evolution of therapeutic product development, and driving towards improved health and well-being throughout the world. Read On.


DIA Considerations Guide: Download Now

Considerations Guide

Developed as part of DIA’s Study of Patient-Centric Initiatives in Drug Development, the Considerations Guide was designed as a practical resource for pharmaceutical companies as you launch or advance patient-centered initiatives that support health care product research and development.

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Patient Engagement Study: Download Now

Patients Webinar

Read this executive summary and detailed study results that include key insights in the following areas: adoption of patient-centric initiatives by pharmaceutical and biotech companies, barriers to adoption of patient-centric initiatives, comparative analytics and results of patient-centric initiatives.

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DIA Releases Results of Patient Engagement in Drug Development Study

The DIA study, conducted in partnership with Tufts University, found that half of pharmaceutical and biotech companies surveyed implementing patient-centric drug development initiatives; but measurement and success vary widely. However, barriers such as risk tolerance, lack of staff, time, and budget have constrained implementation. Furthermore, quantifying results is challenging as there is limited comparative analytic data that support specific methods of patient-centricity.

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Patient Engagement

Visual Model of Patient Engagement

Join the Patient Engagement Conversation

Patient Engagement Community

DIA Members interact in this exclusive online forum, hosting engaging discussions, webinars and connecting with Patient Engagement stakeholders globally.  Already a DIA Member? Join the DIA Patient Engagement Community.

Why DIA Membership?

DIA 2017 Annual Meeting

McCormick Place

Clinical Trials & The Disney Effect

By John Reites, Head of Digital Health Acceleration, Quintiles

Today’s consumers expect seamless, value-driven experiences when they engage with a brand. From buying products online, to…

DIA Workshop on Benefit-Risk Strategy

Hotel Grand Majestic Plaza

Collaboration Benefits Rare Disease Research & Patients

By Vinciane Pirard, MD, DIA Global Forum Content Editor for Rare Diseases & Unmet Medical Needs

Rare diseases don’t share a common etiology or biology; they don’t affect the same organs or present with similar symptoms; but…

Clinical & Regulatory Operational Excellence Forum

Mercure Hotel MOA Berlin

The Evolution of Patient Engagement at FDA

By John Whyte, MD, Director, CDER’s Professional Affairs & Stakeholder Engagement Staff

The drug approval process has traditionally relied heavily on scientific evidence for safety and efficacy. In a recent evolution…

DIA Annual Canadian Meeting

Ottawa Marriott Hotel

iPLEDGE: Patient Access in Restrictive RMPs

By Kirk W. Kerr, PhD; Marta E. Wosinska, PhD

The isotretinoin risk management program iPLEDGE places requirements on patients and providers to ensure that the benefits...

DIA Oligonucleotide-Based Therapeutics Conference

Bethesda North Marriott Hotel and Conference Center

DIA Patient Engagement in Drug Development Study

By Elizabeth Lincoln, DIA Global Director of Engagement

DIA, the leading professional community and knowledge exchange for global health care product development, announced today...

Culture and Process Change for Patient Engagement

By Marc Boutin, JD; Lode Dewulf, MD, DipPharmMed, FFPM; Anton Hoos, MD; Jan Geissler, Dipl-Kfm; Veronica Todaro, MPH; Roslyn F. Schneider, MD, MSc; Vincenzo Garzya, MBA, PMP; Andrew Garvey, BA (Hons); Paul Robinson, FRCP; Tonya Saffer, MPH; Sarah Krug, BA; Ify Sargeant, PhD

Patient Focused Medicines Development (PFMD) is a not-for-profit independent multinational coalition of patients, patient...

14th DIA Japan Annual Meeting 2017

Tokyo Big Sight